Sunday, October 30, 2011

Field Trip #2 - Heaven Scent Farm



This field trip to Heaven Scent Farm did not go as I had expected.

I'll start with the description for the class that we attended...

Wild and Wooly! Goats and Sheep Friday, October 28th
"Gentle as a lamb," "the black sheep of the family" and "what's got your goat?"
are familiar expressions. This farm visit teaches participants about the many
breeds of sheep and goats, what's involved in caring for them, and the variety
of products that come from sheep and goats. This is a fun and unique program
where participants get to spend time with our small flock, as well as visit with
our other barnyard buddies. Open to all grade levels.

We went on this trip with our homeschool group again, it was $7 per child, 3 and under, as well as parents, were free.
Getting there was fairly easy for us.  The farm is a residence, so parking was limited to their driveway (though it's a good size driveway).  According to the woman running the program, it was the largest group they've ever had, so the parking was pretty crammed.

After checking in, the kids had the chance to play on a swingset/playhouse, which Cody loved.  We were then taken into a room, where everyone was seated and the program began.

I'll say now that talk about God and the Bible does not bother me.  I'm not one that thinks it shouldn't be discussed, and we're opening to learning.  In fact, Cody normally goes to a local church for Bible class every Friday, and missed Bible class for this program.

I do believe that there's a time and a place for everything though, and this wasn't it.

The woman running the program proceeded to talk about God, the Bible, sacrificing lambs and sheep, among other Biblical things, for the next hour and 10 minutes.

HOUR AND 10 MINUTES.

With a roomful of young children, ranging in age from approximately 2-15, the majority of which fell toward the lower end of the age range.

At times she became irritated with the young children that couldn't sit still and be quiet through the talk.

By the 45 minute mark I couldn't sit still.  It was uncomfortable sitting on hay bales for that long, and we were all there expecting to learn about lambs and sheep.  I don't think anyone expected to be sitting for that long. 

There was a lot mentioned that I don't think was suitable for the age level there.  Slaughter, sacrifice, blood flowing, graphic description of Jesus' death, and a story about a grandmother that burned her hand with a knitting knitting needle that had been put in a fire because her grandson wouldn't stop stealing are just examples of what was said.

At some point she did discuss sheep's wool, and how it can be turned into yarn, and how it's fire retardant.  That was pretty much the extent of the sheep talk.

The goat talk was limited to her talking about how they raise goats for slaughter, and how expensive it is, but we could purchase some if we wanted.  No pressure of course (this was mentioned several times).

One mom asked questions about how lambs and sheep are raised.  If she hadn't asked those questions, I don't think they would have been addressed.

We were finally taken outside to the barn, after a few snippy remarks from the owner about how the kids couldn't sit still.  The outside portion of the day included the kids having a chance to milk a goat, and then pet several animals (goats, sheep, chickens, a horse and a pot-bellied pig).

At this point I was anxious to leave, and once Cody had a chance with each kind of animal, I talked him into hitting the road.  My goal was to get out of the driveway before everyone tried to leave at once.

So, no, I wouldn't go back here.  I was extremely disappointed in how much of the lecture was spent on religion, considering that wasn't mentioned in the description at all.  And to be honest, if you're having a program that includes small children, any kind of lecture probably wouldn't go over too well.  The kids were excited to learn about lambs and sheep.  Several times kids asked her when they were going to get to see them.  I have a feeling there were quite a few kids that were disappointed over how little was spent talk about and seeing the animals.

Field Trip #1 - Planetarium

One of the things that appealed to me the most about homeschooling was to be able to take Cody on field trips. We live in Northern Virginia, which of course means that we're surrounded by history and lots of field trip opportunities. Cody is still a bit young for some of the things that I want to take him to, but I'm hoping that our path will continue to lead us to homeschooling, and I can take him to see these things in the future.

Our very first field trip was with our homeschool group to Hylton High School Planetarium.

Growing up I went to a planetarium once, in 3rd grade.  This is sad considering that the highschool I graduated from had their own planetarium!  

Cody and I both loved the program!  It was targeted toward the K-3 crowd, so there wasn't a ton of information about the constellations, but it was a nice introduction to it.  The teacher, Mr. Kilgore, was great with the kids and fun to listen to.  They learned how to find the Big Dipper and the North Star, and then learned the story of Perseus and Andromeda.  Following that part of the program, they showed part of a laser show, and a preview of their Fright Light program that they show every Friday night in October. 

Hylton's Planetarium is the most technilogically advanced planetarium within a 600 mile radius of us!

The Friday night shows are open to the public, and the themes change seasonally.  I am looking forward to taking Cody to one of these.  Tickets are $10 per person, all ages, and the planetarium seats 65 people.  A schedule and more information can be found here.


Thursday, October 27, 2011

Child Find - A Rant

I have a problem.

For the last couple weeks I haven't gotten to bed before 2am.

Once the kiddos go to bed, it's my time to hop on the computer and do my work.  I look for stuff to do with Cody for homeschool.  I read message boards and facebook groups that deal with Apraxia.  I read blogs that cover speech and occupational therapy for kids, looking for ideas that I can use to help Luke.  I spend just a little too much time looking for ideas (and cute stuff) on Pinterest.  I get sucked into reading one thing after another, and the next thing I know, it's waaaaay past my bedtime.  It's made mornings not so fun around here, that's for sure.

So where does the ranting come in?  Last night I clicked on Wrights Law and got on the subject of IEPs.  Individualized Education Plan.  Individualized being the key word there.  Luke's IEP is lacking that beginning word, and it's really pissing me off.

The more I read about what should be included in the IEP/IEP process, the more I realized how little they did to help us.  His IEP doesn't even list who will be giving his "speech therapy".  I can tell you who - someone who isn't a speech therapist.  He was instead assigned to a resource teacher.  Luke wasn't even evaluated by Child Find.  They sent another resource teacher to my home (who I thought was a speech therapist until a couple weeks later when I found out otherwise), to observe him.  This observation went on for about 20 minutes. I had to bring up the fact that he was receiving occupational therapy from Early Intervention for his thumb.  She made note of that, saying she didn't notice any problems with his thumb.  So he's not receiving any help for that.  My issue there is that he does sometimes use his thumb as he should....but most of the time he doesn't.  She just didn't happen to see the problem during the few minutes that she watched for the issue.  And of course, as someone who isn't an occupational therapist, I don't feel she had the qualifications to make that decision.

Luke spent six months in Early Intervention for speech therapy (and OT).  In that six months he made zero progress.  It wasn't because his SLP sucked, because she didn't.  The problem was that kids with Apraxia don't respond to typical speech therapy like a child with a developmental delay would.  In EI's defense, we didn't get the Apraxia diagnosis until right before he transitioned out of the program.  So to them they were treating a developmental delay, and were doing what was appropriate for that.

When we met with Child Find for Luke's IEP I gave them a copy of the 5 page evaluation that his current private SLP wrote.  The IEP meeting was the day before the appointment with the developmental pediatrician (I should have canceled the IEP meeting until after the appointment with the ped, but we were given an appointment with the ped at the last minute when they had a cancellation, so I didn't feel "right" canceling the IEP meeting with such short notice) so I didn't have anything yet from the doctor.  But when I mentioned that the appointment was for the next day, and that the private SLP said possible Apraxia, the woman leading the meeting (who happened to be the same woman that came to our house to observe Luke) said that every child entering their program receives the same thing, whether they have Down Syndrome or Apraxia.  Does that make sense?  Doesn't to me.  Apples to oranges.

At the time, we were happy that they gave us 60 minutes a week in our home.  I wasn't happy with him getting a resource teacher instead of a speech therapist, but we went with it.  I have major regrets for not fighting it then.  We didn't realize how much knowledge is required when you go into one of those meetings as a parent.  I thought we were prepared, we obviously weren't.  It makes me mad though that they put the parents in that position.  They are professionals working in their chosen field.  They are the ones that made the choice to work with students that need extra help.  They are paid to do that profession.  And I feel that at least the people we have been dealing with are not following through on that as they should.  Parents should not have to cram a legal education in to be sure that their children are receiving what they are entitled to under the law.  These people should WANT to do what's right for the child. 

The "help" that Luke is receiving from the resource teacher basically entails her sitting at the kitchen table with him for a few minutes, showing him picture cards and occasionally using the iPad with him.  Then we move on to his bedroom where the three of us sit on the floor, Luke plays with toys, I interact with him, and she takes notes.  It's weird, and it's not helping him.  If something like "Luke, say ____" would work, he would be talking by now.  If doing a puzzle with him would work, he would be talking by now.  I do all of those things with him. 

The thing with Apraxia is that someone who has it can't get the words out.  It doesn't matter how much you encourage them, prod them, offer them incentives, etc.  The motor skills aren't there.  It's similar to someone that has had a stroke.  It's just not possible, and they need therapy to fix the oral motor skills.  Telling a child to say a word over and over won't work.  You have to show them how to say it.  You have to remind them of how to work their mouth, jaw and tongue to get the word out correctly even after they've learned the word.  She noticed that Luke was PROMPTing himself for a few words.  I wanted to yell at her, that's what he needs!  

Part of my problem is that when I get mad, I can't talk.  I literally clam up and just sit there staring at the person while I'm fuming inside.  I think it's because I know I'm overly emotional, and if I opened my mouth to say something, I'd probably say multiple things that I would regret saying.  Today she started making strange comments while watching him play.  She commented that he likes to watch the lights flash on one of his toys.  That he shrieks.  That he doesn't stick to one thing for very long.  She asked me how his tantrums were doing.  From the lights comment, I knew where she was going and it just made me more and more mad.  Finally at the end, she asked me if I wanted him tested by the school.  I asked her what for - her response was "oh, you know...everything".  Um, no.  I'm not letting him be tested by them, especially if I can't get an answer on what the testing is for.  After awhile I flat out told her that he has been evaluated by two different developmental pediatricians, and both said he shows no signs of autism or asperger's.  She didn't have much to say to that, but went on talking about his behaviors.

Luke isn't even three yet, and that alone makes him prone to tantrums.  Luke is an intelligent boy who knows what he wants to say, but can't get it out.  So yes, he has tantrums when he wants someone to understand him, but they can't.  Wouldn't you?  Imagine not being able to tell someone what you want to eat, drink, play with, when something hurts or you need something, or when there's a show you want to watch or a book that you want to read.  Imagine the words and sentences forming perfectly in your mind, but when you open your mouth, it doesn't come out right. At Luke's age he has no other way to communicate (though we are working on sign language, and we're saving our pennies for an iPad for him).  Then image how frustrated you would feel.  Then have someone try to turn that justified frustration/tantrum into something like autism when you have no other solid symptoms of it.  I was so angry by the time she left here.

I've read many cases where Apraxic children are misdiagnosed with other things, Autism being a big one.  Apraxic children that are misdiagnosed and put into a classroom with children who have disorders and handicaps much worse than their own.  Nothing against the other children who do have those disorders, but it's not fair to the Apraxic child to be put into an atmosphere that isn't warranted by their particular disorder.

I'm closing with an article about a young man that was featured on the Apraxia-KIDS website a couple months ago.  His name is Luke as well, and he's an 18 year old triathlete from Australia.  He has Apraxia, and his story was told through the website. 

Triathlete Luke Farrell Takes on World and Speech Dyspraxia


Monday, October 24, 2011

Preparing for Halloween 2011

I stumbled across a new (to me) blog today, Food Allergy Feast.

There are several entries about dealing with food allergies on Halloween, lots of great information.

It, of course, got me thinking about how we're going to handle Halloween this year.  This time last year, we were about 7 months into being a food allergy family.  We were getting to the point where we felt like we could handle things and keep Luke safe from his allergens.  I think also that Luke's age made me a little less nervous.  He wasn't quite 2 yet, and he was a bit easier to keep an eye on.  As it ended up, Luke didn't make it to trick-or-treating.  He went full force all day, and fell asleep right before we took Cody out to beg for candy.

This year though, I have a feeling things will be different.  Luke will be 3 soon.  Luke is a little wild man, hard to control and afraid of nothing.  He's also going through a pesky "I don't listen to nobody!" phase.  And did I mention that my husband has to work Halloween night?  So it'll just be me in charge of making sure Luke doesn't dig a fun size Snickers bar out of his Halloween tote and shove it in his mouth in the dark, where I can't see what he's doing.  Super.

The game plan:  We're taking the boys trick-or-treating in a small historical local town on Saturday afternoon.  They'll get to dress up, get some candy, and have fun with other kiddos.  The best part?  It'll be daylight, and my extra set of eyes and hands (husband) will be there.  I'm envisoning a candy bucket for him where you can drop candy in, but can't get it out (kidding...maybe?).  I'll bring my own stash of safe treats for him, so he doesn't feel like he's missing out on anything.  

Halloween night I'll still take Cody out, but will do my best to wear Luke out enough that he falls asleep before begging time rolls around, and can crash on nana and papa's couch again this year while we go out.  

I had such high hopes that he would pass both the peanut and egg challenge, and that we wouldn't be dealing with this again this year.  Maybe next year though.

What Will the Next Year Bring?

Luke has had some speech advances since starting PROMPT the 2nd week of September. He can now say out and on spontaneously. Up is a struggle for him, but he can say it with some help remembering to start the word with an open mouth and end with "soft /p/ sound. When you tell Luke to say up he tends to say "duuuh". We have to tell him no, open your mouth. Say soft /p/. It's quite a process for such a small word.

It is exciting how much progress he has made over the last few weeks. I know to many words like out, on and up don't sound like much. But when you consider that he spent six months in traditional speech therapy through the county and never even attempted those words, it's huge that he's saying them.

Luke is now also singing. It amazes me that he can "sing" along with so many different songs. He may not be able to say the individual words, but he uses intonation to sing along, and you can definitely pick out the different words. Luke will also sing the alphabet with his Leapfrog fridge toy. And, he counts up to 13 on his own. You just have to listen closely to understand some of the words, but they're there.

Luke will be 3 in a few weeks. I can't help but wonder what the next year will bring for him speech wise. I hope and pray that we continue to see improvement.

Luke

Friday, October 21, 2011

Apple Tote Craftiness

I rarely make anything for myself.  It's just much more fun to make cute little things for the boys.

I saw this on Pinterest awhile back, and wanted to give it a try. 


I mean, can you really have too many totes?  

I LOVED the color combo in the one shown, but the green and blue paints that I had on hand didn't seem to go together as well as the ones in the picture.  So I went wild and crazy, and came up with my own thing.

The best part?  I used a tote bag that I had on hand.  I made some totes for my aunts last year with their intials on them.  And I had a couple that I messed up.  I turned one inside out, and voila, good as new.  The bag is obviously inside out, but who cares?  Maybe I meant for it to look like that =)





Viking Boy - Mama Gets Crafty

Can I just say how much I love I Am Momma Hear Me Roar?  She always has the best ideas, most of which involve things for little boys.  It can be hard to find craft ideas for little boys, so I was very excited when I stumbled across her blog last year.  She posted this Viking Tee craft a few weeks ago and I knew I had to give it a try.  I floated the idea past Cody, thinking I'd make it in his size but he wasn't impressed.  He graciously passed the idea onto Luke instead =)  

This craft involves using a freezer paper stencil, which I always love using.  I Googled Viking hat and beard silhouette in Google images, and found a few to choose from.  These particular images were pretty easy to cut out with an Xacto knife, unlike the Darth Vader one that I did a few weeks ago (I don't think I mentioned it, but cutting out all the Darth Vader details with an Xacto knife wasn't easy!).  

I couldn't find the Tulip Beads in a Bottle at our local Joann or Michael's - though they do have it online here.  I ended up ordering mine from Amazon.

And so, I present to you, Viking Luke!

  
Note the small stain - he cannot be trusted with a white shirt!  He inherited that trait from his dad.



Friday, October 14, 2011

Weekly Accomplishments and Update - Speech and Homeschooling.

Just a quick breakdown of some accomplishments we've celebrated this week!

Speech:

Luke has mastered a couple of new words. On, Out and Down are all coming out very clear! He still struggles with Up. Up, On and Out have been a challenge for him because they require you to start with an open mouth position when you say the word (go ahead, try it). Words like Down are a bit easier for him, because it starts with a closed mouth position. That is an example of what apraxia does. The motor planning involved with opening the mouth to say the word is difficult for him. It's not that he can't do it.  It just takes extra concentration for him. I occasionally have to tell him to open his mouth when he says one of those words, because if he doesn't concentrate on it, the words come out "duh" for up, "non" for on, etc. So for him to be able to say these words without prompting, is huge!  Very exciting progress.

Luke continues with the school system's "therapy".  I put it that way because he's not receiving speech therapy.  I'm not really sure what to call it.  A resource teacher comes out and basically gives him toys to play with, and observes him.  Now, Luke has been thoroughly evaluated by both the county (Early Intervention) and the private speech therapist, but never by Child Find (his current program with the school).  My feeling is that the resource teacher, up until today, was in the belief that Luke  had some kind of intellectual disability.  She asked me last week if his speech had ever been evaluated (um, what?).  She offered me cards with pictures to show him what I needed him to do (pick up toys, brush teeth, eat lunch, etc).  The cards really got me going, because it made me realize that she thinks he doesn't understand us when we talk to him.  Do these people even read the child's file??  Today she commented that his receptive language is fine.  Yes, and she should have known that from day one.  It's aggravating to know that someone, who's not even a speech therapist, is coming to our house weekly and doesn't even know WHY she's coming.  My dealings with Child Find through our county has helped confirm my decision to homeschool.


Homeschooling:

Cody is picking up reading very well now that we've found a program that suits his level The Reading Lesson: Teach Your Child to Read in 20 Easy Lessons

This past week Cody has caught on to sight words and word groups, and read a BOB Books: Sight Words: Kindergarten book on his own! I had tears the first time he read it out loud for me. So very proud of him, and I'll admit, a bit proud of myself for teaching him.  Definitely a rewarding moment. 

I highly recommend The Reading Lesson if your child already knows the letters and letter sounds.  We started out with 100 Easy Lessons and then The Ordinary Parent's Guide to Teaching Reading, both of which start out with letter sounds.  Cody was bored with both programs, and so was I.  We're on lesson #3 with The Reading Lesson, and he's already reading.  The book suggests doing 2-3 pages per day in each lesson (there's about 10 pages per lesson) for Cody's age group.  I leave it up to Cody though, and for the last 2 days, we've covered an entire lesson in one sitting.  Yesterday he was begging me to do lesson #4 after finishing lesson #3! 

I'm not knocking either of the other two programs.  They seem like very solid programs.  It's an example though that not every program, no matter how popular it is or how well it's designed, is made for every child.

The biggest piece of advice I can give is to check your library for curriculum books first.  I was lucky in that our library had both 100 Easy Lessons and The Ordinary Parent's Guide, so we were able to try each for a couple weeks.  The library didn't have The Reading Lesson, but I too the plunge and purchased it, because my instinct was that it would work for us.


Tuesday, October 11, 2011

Luke - I Am Your Father Tee

It's been awhile since I shared anything crafty.  My last few crafty adventures have been for baby gifts, and I mailed them off before I had a chance to take pictures.

First, Luke is not named after Luke Skywalker.  We're not even really fans of Star Wars, other than the fact that my husband and I are both children of the 80's.  Not to mention Hans Solo was more my type back in the day :)

A friend of mine who's husband is named Luke warned me when I told her what we were naming our second minion child that we would get a lot of the "Luke, I am your father" quotes.  It hasn't happened yet, other than from my husband.  But when I saw this Who's Your Daddy? shirt idea, I couldn't resist.  I mean, his name IS Luke which makes it funny, right? 



Sunday, October 9, 2011

DIY Baked Egg Trial

Let me start out by saying that this is the LAST time that we'll do a "trial" at home, even at the allergist's recommendation.  I'll leave it up to the professionals from now on.

As I mentioned before, the allergist wanted us to give him something with baked egg in it.  Cookie, cake, muffin, etc...things that are generally baked at 350-375 degrees for a minimum of 15 minutes.  She instructed us to give him a serving, and if he vomited like he did the last time, to call and let her know.  If he didn't, we were to try something else with baked in egg a couple more times.  I think her thought was that the weekend he threw up after eating the cookie, and then the corn dog, was a fluke.

I was a little apprehensive about it, but Friday morning I was baking cookies anyway for a bake sale, and decided to go ahead and get the trial over with.  I wanted to do the trial while my husband was home.

I baked the same cookies that I made the last time he vomited.  The recipe called for one egg, and was supposed to make approximately two dozen cookies - I ended up with 18.  I gave one to Luke, and his immediate reaction was "ewwww!".  I think he remembered that the last one made him sick.  I left him alone with it, watching him from the kitchen, and he nibbled at it.  I got him to take a few bites by pretending to eat it myself.  He ate about half of it before he abandoned it for good.

An hour later my thought was that he either wasn't going to react to the egg, or didn't eat enough of the cookie to react to it.  I figured we would just have to try something else on Monday.  I ended up leaving to run some errands while my husband stayed with the boys.  I made it ten minutes from home, and got a phone call that Luke had vomited, but was otherwise ok.  Just as I arrived at my first stop, I got another call - this time Luke was sneezing, his nose was running and his eyes were red.  I went into panic mode.  My husband wanted to give him Benadryl.  I said no, I think he needs the Epi.  My husband hesitated, said he didn't think it was that bad.  I ended up driving home like a bat out of hell.

Once I got home, I saw that Luke was doing "ok".  His eyes were watery, his nose was stuffy and a little runny, but nothing horribly bad.  He was alert, using his own little Luke language to tell me that he threw up.  I called the allergist's office, and the response was to keep him off of egg (duh) and to give him Benadryl.  So no Epi was needed, but I thought for sure we were going to have to bust it out.  To me it was a significant reaction, definitely worse than the ones he had previously with the same cookie and then a corn dog.  

So we're pretty much back to square one.  No eggs, no nuts.

Thursday, October 6, 2011

Food Challenge Results

I wish I could say that Luke's peanut challenge went really well.  That he passed it with flying colors, and that I'm sitting here enjoying a peanut butter and banana sandwich to celebrate.

But I can't.

What I can say though, is that nothing dramatic happened, which is a huge win in my book.  No Epi-Pens were used in the dramatization of this story.

We got to the third serving of peanut butter.  They started out giving him a small amount on the tip of a tongue depresser, and smeared it on the inside of his cheek.  Fifteen minutes later they checked his blood pressure and checked for hives, everything was good.

A few minutes later we moved on to the second dose, this time a bit of peanut butter on a spoon.  He LOVED it.  Licked it like it was an ice cream cone, asked for more.  I was so excited, thinking it was a good sign.  Fifteen minutes later, another blood pressure and hive check.  Everything looked good.

Again, a few minutes later, they brought in the third dose.  This time it was a bit of peanut butter, I would estimate about 1/4th of a teaspoon, spread on a mini Saltine cracker.  Luke was in heaven eating that thing, and I was even more excited.  The nurse promised him more when she came back.  So we sat there, coloring, waiting for the fifteen minutes to be up.  Then he sneezed.  Sneezed again.  And I could see his nose was starting to run.  It caught my attention because his previous serious reactions both started with sneezing and nose congestion (along with vomiting).  But I told myself it could easily have just been an innocent sneeze accompanied by a runny nose.  

Then the scratching started.  First his shoulder, the top of his head, then his chin.  By the time he scratched his belly I was concerned, so I lifted his shirt.  Sure enough, he had two hives right above the waistband of his pants.  As I was looking him over, I saw another one pop up on his neck.  I panicked fought the urge to run out of the room yelling for the nurse.  By the time she came back, another one was next to the original one on his neck. They checked his blood pressure (it was fine) and looked him over.  The doctor declared the food challenge a fail, and it was stopped.  He was given a mega dose of Benadryl (which made him one sleepy boy), and the hives slowly disappeared.

So, no peanut butter for another year, we'll re-test then.  The doctor feels that he has a good chance of outgrowing the allergy, we're just not there yet.  She thinks that his reaction today, compared to how he reacted to a similar amount of peanut butter 18 months ago, is a good sign that he's in the process of outgrowing it.  Although that doesn't mean we can assume any other reactions will be similar.  A reaction is not an indicator of future reactions.  You can go from a very mild one, like he had today, to anaphylactic the very next time.  This is also an excellent example that you can't rely on blood test numbers to determine what, if any, reaction someone will have to an allergen.  Luke's blood test number for peanuts was negative, yet he still reacted.

As for the egg issue, she was puzzled with his reactions.  70% of kids with egg allergies can handle baked in egg, which is what he had when he had the two reactions (one to cookies, the other to homemade corndogs).  So she wants us to try baked in egg and see what happens.  I'm baking cookies tonight, the same one he reacted to.  If he vomits again, we're to stop and let her know.  If he doesn't vomit, she wants us to try it a few times.  If he vomits, we'll have an in office food challenge for eggs, I'm assuming baked eggs.  Figures my kid would be the one that can handle cooked eggs, but not baked!  (Baking an egg changes the proteins, which is where the allergen is, and because of this, most kids can handle eggs if they're baked at a certain temperature for a certain length of time)

Domino's was another puzzle for her.  I think we pretty much determined that there must have been some kind of cross contamination there.  They have a white pizza sauce that contains egg, and I'm thinking maybe that got on the bread sticks somehow (same cutter maybe?).

Finally, she doesn't think he had an allergic reaction to the topical medicine.  And the thought is that maybe he never had scabies.  She thinks it was a viral infection, and it caused him to break out in hives.  If he had reacted to the medicine, he would have been covered with hives everywhere that it touched, and he wasn't.  It covered a good portion of his body, but not even close to everywhere that it touched (I put it on him from head to toe, as the directions said).  And no, I'm not disappointed at all to learn that he probably didn't have scabies.  I'll take that information any day!  I itched for two days thinking that we were all covered in scabies.

So that's it.  A fail, and some interesting information.  The good thing is that it's not life altering for us, unlike how it was when we first learned of his peanut allergy.  We'll continue on as we have for the last 18 months.  We were looking forward to learning that he had outgrown the allergy, but dealing with it is very doable.  

Wednesday, October 5, 2011

Peanut Challenge

Tomorrow is Luke's peanut challenge.

I'm very nervous.

I think I've put the challenge out of my mind, pretending like it wasn't getting close.  This morning though, I woke up thinking about it, and it's been on my mind all day.

The egg challenge was difficult enough.  I have a feeling giving my little Luke something that caused such a horrible reaction just 18 months ago will be even harder.

Eighteen months of avoiding a food item like the plague.  Fearing accidental contact, devoting every waking minute to making sure that he didn't come close to it.  And tomorrow I'll smear some on a saltine cracker and feed it to him.

Also on the to do list - talk to the allergist about the reactions he had after eating egg (and the mysterious Dominos reaction), and the reaction that he had to a topical medication last week (long story short, Luke got scabies, I applied the same cream that Cody was prescribed, and Luke woke up the next morning covered in hives).